Thursday, August 13, 2009


So, the EKG showed a substantial amt of fluid around his heart, and that his ASD was what they considered large, so they flew him out here to Balboa so he could be seen by a specialist. We run around like chickens with our heads cut off trying to get my breast pump and paper work sorted out before we go. Andrew was told he would be flying with X, so i drop A off at Miranda's house so we can go to the hospital together. When we get there, the childrens hospital nurses say that he cannot come with them. We send him off, and follow the ambulance all the way to the airport. Then we packed in a hurry to get everything done. When we arrive. X was doing wonderfully. They did another EKG this a.m. and said the fluid has gone down and it is no longer an emergency, so as long as no complications arise, X will probably have the surgery to repair it in a few months. They took him off the canula last night, and he is doing very well. He is still struggling at times to breathe, but the canula was just a crutch and not needed anymore. He has an iv port again, but just for his Lasix, as it works better in an iv than orally. He is opening his eyes a bit more. They upped his feeds back to 50, and are supplimenting in more calories. The cardiologist informed me that because of his heart, we will more than likely have to suppliment in extra calories until his surgery. The fisher house here is really nice. But i REALLLLY cannot wait to get home.


  1. I'm so happy for X and your family! I"m glad the little man is getting better!

  2. I am so happy that X is doing better. I will continue to keep you and your family in my prayers.