Saturday, September 5, 2009
So, X took a few whole bottles today, we are so very proud of him!!!!!! His feeding tube was almost out, and some nurse just taped it on, halfway out, without even checking it. This sounds unimportant, but this is EXTREMELY serious, expecially with his already fluid filled lungs, as he can drown on his own feed. I was the one who noticed. The nurses gave me the hope that he could go on a walk around the nicu, and possibly even outside, only to tell me that they are afraid to take him off the monitors because of his Heart failure. He has not had a desat in weeks.